Publications, Presentations & Media

Healthtalk Australia publications

Books

Kokanović R and Michaels P (Eds.) with Johnston-Ataata K (in press) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. London: Palgrave MacMillan.

Book chapters

Michaels P and Kokanović R (forthcoming 2018) The complex and contradictory emotional paths to parenthood. In R Kokanović, P Michaels and K Johnston-Ataata (eds) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Basingstoke: Palgrave Macmillan.

Stone M and Kokanović R (forthcoming 2018) Narrating and disrupting postnatal depression. In R Kokanović, P Michaels and K Johnston-Ataata (eds) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Basingstoke: Palgrave Macmillan.

Johnston-Ataata K, Kokanović R & Michaels P (forthcoming 2018) ‘One of the most vulnerable times in your life’: Expectations and emotional experiences of support in the early postnatal period. In R Kokanović, P Michaels and K Johnston-Ataata (eds) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Basingstoke: Palgrave Macmillan.

Peer-reviewed papers

2018

Stone M, Kokanović R, & Broom A (2018) Care(less) encounters: Early maternal distress and the haunted clinicSubjectivity. DOI: 10.1057/s41286-018-0047-0

Knight F, Kokanović R, Ridge D, Brophy L, Hill N, Johnston-Ataata K & Herrman H (2018) Supported Decision-Making: The Expectations Held by People With Experience of Mental Illness. Qualitative Health Research28(6), 1002-1015.

Eassey D, Reddel H, Foster J, Kirkpatrick S, Locock L, Ryan K & Smith L (2018) “...I’ve said I wish I was dead, you’d be better off without me”: A systematic review of people’s experiences of living with severe asthma. Journal of Asthma. DOI: 10.1080/02770903.2018.1452034.

2017

Ridge D, Broom A, Kokanović R, Ziebland S & Hill N (2017) Depression at work, authenticity in question: Experiencing, concealing and revealingHealth: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. DOI: 10.1177/1363459317739437

Treloar C, Pienaar K, Dilkes-Frayne E and Fraser S (2017) Lives of Substance: a mixed-method evaluation of a public information website on addiction experiences. Drugs: Education, Prevention and Policy. DOI: 10.1080/09687637.2017.1397602

Pickles K, Eassey D, Reddel H, Locock L, Kirkpatrick S and Smith L (2017) "This illness diminishes me. What it does is like theft": A qualitative meta-synthesis of people's experiences of living with asthma. Health Expectations. 21(1), 23-40.

Dilkes-Frayne E, Fraser S, Pienaar K & Kokanović R. (2017). Iterating 'addiction': Residential relocation and the spatio-temporal production of alcohol and other drug consumption patterns. International Journal of Drug Policy. 44: 164-173.

Pienaar K & Dilkes-Frayne E. (2017). Telling different stories, making new realities: The ontological politics of ‘addiction’ biographies. International Journal of Drug Policy. 44: 145-154.

Fraser S, Pienaar K, Dilkes-Frayne E, Moore D, Kokanović R, Treloar C and Dunlop A. (2017). Addiction stigma and the biopolitics of liberal modernity: A qualitative analysisInternational Journal of Drug Policy. 44: 192-201.

Moore D, Pienaar K, Dilkes-Frayne E and Fraser S. (2017). Challenging the addiction/health binary with assemblage thinking: An analysis of consumer accountsInternational Journal of Drug Policy. 44: 155-163.

2016

Pienaar K, Moore D, Fraser S, Kokanović R, Treloar C & Dilkes-Frayne E. (2016). Diffracting addicting binaries: An analysis of personal accounts of alcohol and other drug 'addiction'. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. 21(5): 519-537.

Stone M and Kokanović R. (2016) “Halfway towards recovery”: Rehabilitating the relational self in narratives of postnatal depression. Social Science & Medicine. 163: 98-106.

2015

Ridge D, Kokanović R, Broom A, Kirkpatrick S, Anderson C & Tanner C. (2015) “My dirty little habit”: Patient constructions of antidepressant use and the ‘crisis’ of legitimacy. Social Science & Medicine. 146: 53-61.

Tudball J, Smith L, Ryan K, Williamson M and Manias E. (2015) Challenges to consumers travelling with multiple medicines. Journal of Pharmaceutical Health Services Research. 6(3): 127-132.

Anderson C, Kirkpatrick S, Ridge D, Kokanović R & Tanner C. (2015) Starting antidepressant use: a qualitative synthesis of UK and Australian data. British Medical Journal Open. 5(12): 1-9.

Pienaar K, Fraser S, Kokanović R, Moore D, Treloar C & Dunlop A. (2015) New narratives, new selves: Complicating addiction in online alcohol and other drug resources. Addiction Research and Theory. 23(6): 499-509.

Smith L, Hill N & Kokanović R. (2015) Experiences of depression, the role of social support and its impact on health outcomesJournal of Mental Health. 24(6): 342-346.

Kokanović R and Bozic-Vrbancic S. (2015) Being marked as different: The emotional politics of experiences of depression and migrant belongingsEmotion, Space and Society. 16: 130-137.

2014

Kokanović R and Philip B. (2014) ‘Medicalising Emotional Talk: Disclosing a Diagnosis of Depression’ in Davis M & Manderson L. (eds) Disclosure and identity in health and illness. London: Routledge.

2013

Kokanović R, Bendelow G & Philip B. (2013) Depression: The ambivalence of diagnosis. Sociology of Health and Illness. 35(3): 377-390.

Kokanović R, Butler E, Halilovich H, Palmer V, Griffiths F, Dowrick C & Gunn J. (2013) Maps, models, and narratives: The way people talk about depressionQualitative Health Research. 23(1): 114-125.

Reports

Kokanović R, Brophy L, McSherry B, Hill N, Johnston-Ataata K, Moeller-Saxone K and Herrman H. (2017) Options for Supported Decision-Making to Enhance the Recovery of People Experiencing Severe Mental Health Problems. Melbourne: Melbourne Social Equity Institute, University of Melbourne. ISBN: 978 0 9942709-7-9.

Pienaar K, Dilkes-Frayne E, Fraser S, Kokanović R, Moore D, Treloar C & Dunlop A. (2017) Experiences of alcohol and other drug addiction, dependence or habit in Australia: Findings and recommendations from a national qualitative study. Melbourne: National Drug Research Institute, Curtin University.

 

Healthtalk Australia conference presentations 

2018

Flore J and Kokanovic R. (forthcoming) Iatrogenesis: Experiencing the complex effects of psychotropic medication. 7th Qualitative Research on Mental Health Conference, Berlin, Germany, September.

Johnston-Ataata K and Kokanovic R (2018) Reflecting on the past: How contemporary mothers draw on biographical, family and social histories in making sense of emotional experiences in early parenthood. Australian Mothering in Contemporary and Historical Perspective symposium. University of Melbourne, Melbourne, Australia, February. (Invited presentation)

Eassey D, Reddel H, Ryan K & Smith L (2018).  "[Severe asthma] is a constant thing that is very debilitating... every day is a bit of a struggle": People's experiences of living with severe asthma. The Thoracic Society of Australia and New Zealand Conference, Adelaide.

2017

Eassey, D., Reddel, H., Ryan, Kath., Smith, L. (2017). “I’ve said I wish I was dead, you’d be better off without me”: A systematic review of people’s experiences of living with severe asthma.” The Thoracic Society of Australia and New Zealand Conference, Canberra.

Eassey, D., Reddel, H., Ryan, Kath., Smith, L. (2017).“It is so hard communicating…you really need to listen to what the person is saying, not what you think they're saying.”: People’s experiences of living with severe asthma. The International Conference on Communication in Healthcare (ICCH), Baltimore, USA.

Flore J, Johnston-Ataata K, Kokanović R, Vincent A, Boyle J and Teede H. (2017) Early menopause, social stigma and the complexities of embodied ageing. The Australian Sociological Association Health Day, UNSW, Sydney, October.

Fraser S. (2017). Doing ontopolitically-oriented research: Investigating and enacting lives of substance. Contemporary Drug Problems Conference, Helsinki, Finland, August.

Kokanović R and Brophy L. (2017) Supported Decision-Making: Expectations held by people with lived experiences of mental illness. International Academy of Law and Mental Helath (IALMH) International Congress, Prague, Czech Republic.

Eassey D, Reddel H, and Smith L. (2017). “I’m a person with asthma, I’m not the asthma first.”. Personal experiences of severe asthma: A review. Thoracic Society of Australia and New Zealand Annual Conference, Canberra, Australia.

Fraser S. (2017). Rethinking addiction: Promoting understanding and reducing stigma. Invited plenary presentation and discussion panel. Counties Manukau Alcohol and other Drug Research Symposium, Auckland, New Zealand.

Farrugia A and Fraser S. (2017). Experiences of alcohol and other drug addiction, dependence or habit in Australia: Findings from a national qualitative study. Addiction Conference, Gold Coast.

2016

Stone M and Kokanović R. (2016) "Halfway towards recovery": Rehabilitating the relational self in narratives of postnatal depression. International Conference on Narratives of Health & Illness, Tenerife, Canary Islands.

Eassey D, Pickles K, Reddel H, Locock L, Kirkpatrick S, Smith L. (2016) “This illness diminishes me. What it does is like theft”: A qualitative synthesis of people’s experiences of living with asthma. DIPEx International Scientific Meeting, Tenerife, Canary Islands.

Fraser S, Pienaar K, Dilkes-Frayne E, Moore D, Kokanović R, Treloar C & Dunlop A. (2016) Lives of Substance: Experiences of addiction, dependence or drug habit in Australia. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Dilkes-Frayne, E. (2016). How does place generate or disrupt alcohol and other drug consumption? Residential relocation in accounts of ‘addiction’. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Fraser S. (2016). Beyond disease: Responding to accounts of ‘addiction’-related stigma and discrimination. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Moore D. (2016). Consumer accounts of ‘addiction’, health and well-being: Implications for policy and practice. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Pienaar K. (2016) ‘Telling stories, making selves: A critical analysis of ‘addiction’ biographies’. Social and Legal Studies of Addiction symposium, Melbourne, Australia.

Dilkes-Frayne E. (2016) ‘Producing continuity and change in drug consumption in the dynamic spaces of daily life’. Social and Legal Studies of Addiction symposium, Melbourne, Australia.

Kokanović R, Johnston-'Ata'ata K, Hill N & Hart C. (2016) Personal Experiences of Health and Illness on the Internet: DIPEx International Collaboration and Healthtalk Australia. Third ISA Forum of Sociology. Vienna, Austria.

2015

Johnston-'Ata'ata K and Kokanović R. (2015) "I just thought I could do it all on my own": Diverse parents' experiences of distress, isolation and dependency in early parenthood. The Australian Sociological Association - Family, Relationships and Gender Thematic Group Symposium. Melbourne, Australia.

Brophy L, Kokanović R & Tanner C. (2015) Perspectives on Supported Decision-Making and Community Treatment Orders. XXXIVth International Congress of Law and Mental Health. Vienna, Austria.

Pienaar K. (2015) New narratives, new selves: Complicating addiction in online alcohol and other drug resources. Victorian Substance Use Research Forum (VSURF). Melbourne, Australia.

Team V, Ryan K, Wild K, Tudball J, Maypilama L & Smith L. (2015) Healthtalkonline Australia: Immigration, ageing and health. Inaugural International Conference on Migration Social Disadvantage and Health. Melbourne, Australia.

Tudball J, Smith L, Ryan K, Morgan T, Eichhorn U & Simpson V. (2015) Translating people's lived experiences with multiple medicines into an online resource to inform decision making. International Society for Evidence-Based Health Care. Sydney, Australia.

Pienaar K, Moore D, Fraser S, Kokanović R, Treloar C & Dilkes-Frayne E. (2015) Beyond the volition/compulsion binary: A diffractive reading of personal accounts of alcohol and other drug (AOD) ‘addiction’. Contemporary Drug Problems (CDP) Conference. Lisbon, Portugal.

2014

Kokanović R (2014) Using qualitative research inpatient experiences to inform health service development: Healthtalk Australia. Australian Disease Management Association Conference. Melbourne, Australia.

Ridge D, Kokanović R, Kirkpatrick S, Anderson C & Tanner C. (2014) “[My] Dirty Little Secret”: The Moral Cosmology of Antidepressant Taking. British Sociological Association Medical Sociology Annual Conference. Aston University, UK.

Kokanović R, Philip B, Ridge D & Ziebland S. (2014) Depression, work and identity in a neoliberal world: Perspectives from Australia and the UK. XVIII International Sociological Association (ISA) World Congress of Sociology. Yokohama, Japan.

Wild K, Ryan K, Team V, Tudball J, Maypilama L & Smith L. (2014) The use of visual methods in ageing research. XVIII International Sociological Association (ISA) World Congress of Sociology. Yokohama, Japan.

Team V. (2014) Cultural diversity in people’s experiences of ageing. The Cultural Diversity in Ageing 2014 Conference, Melbourne, Australia.

Kokanović R and Bozic S. (2014) Imaging the subject. Narrative Matters: Narrative Knowing / Récit et Savoir. Paris, France.

Zalitis D. (2014) The emotional experiences of pregnancy, birth and early parenthood. NSW Midwives Association Conference. Sydney, Australia. (With R Kokanovic and K Johnston-'Ata'ata)

2013

Ryan K. (2013) Personal experience narratives of ageing: An evidence-based multimedia web resource. Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

Kokanović R and Philip B. (2013) Questioning notions of ‘recovery’ from ‘depression’. British Sociological Association Medical Sociology Annual Conference. University of York, UK.

Kokanović R and Philip B. (2013) Pharmaceutical encounters – subjective experiences of antidepressant medication. EASA Medical Anthropology Network AAA Society for Medical Anthropology Joint International Conference. Tarragona, Spain.

Team V. (2013) The need for an Australian Healthtalkonline module on ageing experiences. Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

Tudball J and Smith L. (2013) Managing multiple medicines gets easier with age? Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

Wild K and Ryan K. (2013) Including remote-dwelling Aboriginal participants in broad qualitative research. Grey Expectations: Ageing in the 21st Century 46th National Conference. Sydney, Australia.

Kokanović R. (2012) The ‘recovery’ of the Self through Depression. The Phenomenology of Depression International Workshop. University of Osnabruck, Germany.

 

Healthtalk Australia invited presentations

Kokanović R. (2015) Using qualitative research on health experiences to support young peoples' mental health. Orygen, The National Centre for Excellence in Youth Mental Health, Melbourne, Australia.

Moore D. (2015) Challenging addiction. Keynote address at the Australian Youth AOD Conference, Melbourne, Australia.

Pienaar K. (2015) A new online resource on lived experiences of alcohol and other drug (AOD) addiction in Australia. Turning Point Alcohol and Drug Centre. Melbourne, Australia.

Kokanović R. (2015) The ethics of ambivalence and being “good enough'': Psychiatrists’ experiences of supported decision-making in the context of mental illness. St Vincent’s Hospital – Mental Health. Melbourne, Australia.

Ryan K. (2015) Experiences of Ageing in Australia. Paper presented at the Healthdirect Australia and Healthtalk Australia launch of The Lived Experience of Ageing module. Sydney, Australia.

Kokanović R. (2013) Medicalising emotions: Antidepressant use in women. St Mary’s Hospital, Réseau Universitaire Intégré de Santé (RUIS) McGill University. Montreal, Canada.

Ryan K. (2012) Personal experiences of health and illness on the web: A multi-media resource for patients, families and professionals. Paper presented at the Centre for Medicine Use and Safety, School of Pharmaceutical Sciences, Monash University, Melbourne.

Ryan K. (2011) Personal experiences of health and illness: a multi-media web resource. School of Nursing & Midwifery Research Seminar Series, La Trobe University, Melbourne, Australia.

 

Healthtalk Australia media

Fraser S and Pienaar K. (22 November 2016) Interview on Small Change, Radio Adelaide (101.5 FM) about Lives of Substance research findings. Listen to the podcast.

Fraser S. (5 October 2016) Interview on Radio National RN Afternoons program about Lives of Substance research findings (with website advocate Kate Holden). Listen to the podcast.

Kokanović R. (27 July 2015) Interview on Croatian Program, SBS Radio about Healthtalk Australia

Johnston-'Ata'ata K. (24 November 2014) Interview on Mornings with Linda Mottram (702 ABC Sydney) about Emotional Experiences of Early Parenthood in Australian Families research findings

Johnston-'Ata'ata K. (24 November 2014) Interview on Afternoons with Louise Maher (666 ABC Canberra / Newcastle) about Emotional Experiences of Early Parenthood in Australian Families research findings

Johnston-'Ata'ata K. (15 November 2014) Interview on Saturday Morning with Hillary Harper (774 ABC Melbourne) about Emotional Experiences of Early Parenthood in Australian Families research findings

Kokanović R and Johnston-'Ata'ata K. (7 November 2014) 'Support for new parents is just a click away', Monash University news.

Johnston-'Ata'ata K and Kokanović R. (2 October 2014) 'I didn't know who I was anymore': Myths vs realities of early parenthood, The Conversation.

Johnston-'Ata'ata K. (19 September 2014) Invited guest on Radio National Life Matters talkback program "So you're going to be a dad"

 

Other relevant publications by Healthtalk Australia researchers

Kokanović R & Flore J (2017) Subjectivity and illness narratives. Subjectivity. 10(4): 329-339.

Lewis S, Willis K, Kokanovic R & Pirotta M (2015) ‘I’m managing myself’: How and why people use St John’s wort as a strategy to manage their mental health risk. Health, Risk & Society. 17(5-6): 439-457.

Ziebland S and Kokanovic R. (2012). Emotions and chronic illness, Chronic Illness. 8(3): 159-162.

Locock L and Smith L. (2011) Personal benefit, or benefiting others? Deciding whether to take part in clinical trials, Clinical Trials. 8(1): 85-93.

Locock L and Smith L. (2011) Personal experiences of taking part in clinical trials – A qualitative study, Patient Education and Counseling. 84(3): 303–309a.

 

Other relevant conference presentations by Healthtalk Australia researchers

Anderson C, Chana T, Ryan K, Smith L & Herxheimer A. (2012) "They Filled Me with Pills." Patient's Experiences of Taking Medicines Following a Heart Attack. Social Pharmacy & Pharmaceutical and Health Consumer Protection Conference. Phuket, Thailand.

Ryan K, Smith L, Hislop J, Anderson C & Herxheimer A. (2012) How Do Women Talk About HRT? Discourses of Risk and Decision-Making in Experiential Narratives of Menopause. Social Pharmacy & Pharmaceutical and Health Consumer Protection Conference. Phuket, Thailand.

 

Conference presentations drawing on Healthtalk Australia research

McNair R. (2015) Same-sex parented families: Triumphs and challenges. Australian Society for Psychosocial Obstetrics and Gynaecology Conference. Royal Women’s Hospital, Melbourne, Australia. (Invited presentation)

* 2011 onwards