Publications, Presentations & Media

Since Healthtalk Australia's establishment in 2012 we have conducted 8 research projects leading to:

  • 10 online resources
  • 36 academic publications
  • 45 conference presentations
  • 10 invited talks
  • 16 articles and interviews in the news media.

For more details, please see below! Outputs are listed by project, with those about Healthtalk Australia in general or relevant to our work listed at the end of the page.

Quick Links

Severe Asthma
Early Menopause
Mental health and supported decision-making
Multiple Medicines
Ageing
Early Parenthood
Depression
Lives of Substance
Healthtalk Australia
Other related publications


 

Severe Asthma

(Online resource published 2019)

Peer-reviewed journal articles

Eassey D, Reddel HK, Ryan K & Smith L (2019) Living with severe asthma: The role of perceived competence and goal achievementChronic Illness. Published Online First: 25 October 2019. DOI: 10.1177/1742395319884104

Eassey D, Reddel HK, Ryan K & Smith L (2019) Barriers to belonging: the need for relatedness amongst people living with severe asthmaJournal of Asthma. Published Online First: 26 August 2919. DOI: 10.1080/02770903.2019.1656230

Eassey D, Reddel H, Ryan K & Smith L (2019) The impact of severe asthma on patients’ autonomy: A qualitative study. Health Expectations. 22, 528– 536.

Eassey D, Reddel H, Foster J, Kirkpatrick S, Locock L, Ryan K & Smith L (2018) “...I’ve said I wish I was dead, you’d be better off without me”: A systematic review of people’s experiences of living with severe asthmaJournal of Asthma. DOI: 10.1080/02770903.2018.1452034.

Pickles K, Eassey D, Reddel H, Locock L, Kirkpatrick S and Smith L (2017) "This illness diminishes me. What it does is like theft": A qualitative meta-synthesis of people's experiences of living with asthmaHealth Expectations. 21(1), 23-40.

Conference presentations

Eassey D, Reddel H, Ryan K & Smith L (2018). "[Severe asthma] is a constant thing that is very debilitating... every day is a bit of a struggle": People's experiences of living with severe asthma. The Thoracic Society of Australia and New Zealand Conference, Adelaide.

Eassey, D., Reddel, H., Ryan, Kath., Smith, L. (2017). “I’ve said I wish I was dead, you’d be better off without me”: A systematic review of people’s experiences of living with severe asthma.” The Thoracic Society of Australia and New Zealand Conference, Canberra.

Eassey, D., Reddel, H., Ryan, Kath., Smith, L. (2017).“It is so hard communicating…you really need to listen to what the person is saying, not what you think they're saying.”: People’s experiences of living with severe asthma. The International Conference on Communication in Healthcare (ICCH), Baltimore, USA.

Eassey D, Reddel H, and Smith L. (2017). “I’m a person with asthma, I’m not the asthma first.”. Personal experiences of severe asthma: A review. Thoracic Society of Australia and New Zealand Annual Conference, Canberra, Australia.

Eassey D, Pickles K, Reddel H, Locock L, Kirkpatrick S, Smith L. (2016) “This illness diminishes me. What it does is like theft”: A qualitative synthesis of people’s experiences of living with asthma. DIPEx International Scientific Meeting, Tenerife, Canary Islands.

Smith, L. (2016). “Severe asthma: Towards a consumer resource”. Asthma Australia Symposium, Sydney, Australia.

 

Early Menopause

(Online resource published 2019)

Peer-reviewed journal articles

Johnston-Ataata K, Flore J, Kokanović R, Hickey M, Teede H, Boyle J & Vincent A. (accepted 12 May 2020) ‘My relationships have changed because I’ve changed’: Biographical disruption, personal relationships, and the formation of an early menopausal subjectivity. Sociology of Health and Illness.

Conference presentations

Johnston-Ataata K, Flore J, Kokanovic R, Hickey M, Teede H, Boyle J & Vincent A. (forthcoming) ‘My relationships have changed because I’ve changed’: Biographical disruption, personal relationships, and the formation of an early menopausal subjectivity. 2020 Australian Society for Psycho-Social Obstetrics and Gynaecology (ASPOG) conference, Adelaide, Australia. (Postponed to 2021 due to COVID-19).

Yeganeh L, Johnston-Ataata K, Flore J, Huynh K, Hickey M, Boyle JA, Kokanović R, Teede H & Vincent AJ. (forthcoming) Knowledge translation: Development of a co-designed early menopause digital resource. International Menopause Society 17th World Congress, Melbourne, Australia, (Postponed to 2021 due to COVID-19).

Yeganeh L, Huynh K, Johnston-Ataata K, Flore J, Hickey M, Boyle JA, Kokanović R, Teede H & Vincent AJ. (forthcoming) Evaluation of a co-designed early menopause digital resource. International Menopause Society 17th World Congress, Melbourne, Australia, (Postponed to 2021 due to COVID-19).

Johnston-Ataata K, Vincent A, Flore J, Yeganeh L, Kokanović R, Boyle J, Hickey M, & Teede H. (2019) Early Menopause: Experiences and Perspectives of Women and Health Practitioners – Overview and Evaluation Results. DIPEx International Annual Meeting, Oxford, UK, November.

Johnston-Ataata, K., Flore, J., Kokanović, R., Hickey, M., Teede, H., Boyle, J., & Vincent, A. ‘Personal relationships and gender in the wake of cancer-related early menopause: women’s experiences’, Oral Presentation: 20th World Congress of Psycho-Oncology and Psychosocial Academy, Hong Kong, November.

Flore J, Johnston-Ataata K, Kokanović R, Vincent A, Boyle J and Teede H. (2017) Early menopause, social stigma and the complexities of embodied ageing. The Australian Sociological Association Health Day, UNSW, Sydney, October.

Invited talks and presentations 

Johnston-Ataata K & the project team. (2020) Early Menopause: Experiences and Perspectives of Women and Health Practitioners NHMRC Partnership Project - Overview of qualitative study findings & online resource. Presentation to the Women's Health Victoria Sexual and Reproductive Health Community of Practice. Melbourne, Australia, February.

Johnston-Ataata K & the project team. (2018) Early Menopause - An Online Resource. Presentation to the Think Pink Breast Cancer 104: Fertility, Menopause & Sexuality Education Forum. Melbourne, Australia, November.

Launch presentation

Johnston-Ataata K, Flore J & Kokanović, R. (2019) Early Menopause: Experiences and Perspectives of Women and Health Practitioners NHMRC Partnership Project NHMRC Partnership Project: Overview of qualitative study findings. Presentation at the Early Menopause online resources launch, Melbourne, Australia, November.

Media

Upping the ante to tackle early-onset menopause. Lens, Monash University, 23 January 2020

Healthy designer, 30, who suffered hot flushes and mood swings for two years reveals the heartbreaking moment she found out she was going through menopause at just 25. Alice Murphy, Daily Mail Australia (Femail), 6 November 2019

'I Wanted To Be A Mum': Aussie Women Are Going Through Menopause At 25. Emma Brancatisano, 10daily.com.au, 6 November 2019

'Nobody understood': Online resource for early menopause. Amanda Lyons, NewsGP, 4 November 2019

'My first reaction was to cry': Lorena showed signs of menopause at 25. Melissa Cunningham, Sydney Morning Herald, 3 November 2019 (cross-published at The Age and Brisbane Times)

New support for women experiencing early menopause, RMIT News, Chanel Bearder, 4 November 2019

 

Mental health and supported decision-making

(Online resources published 2016)

Peer-reviewed journal articles

Stone M, Kokanovic R, Callard F & Broom A (2019) Estranged relations: Coercion and care in narratives of supported decision-making in mental healthcareMedical Humanities. Published Online First: 30 July 2019. DOI: 10.1136/medhum-2018-011521

Brophy L, Kokanović R, Flore J, McSherry B & Herrman, H (2019) Community Treatment Orders and Supported Decision-MakingFrontiers in Psychiatry. 10, 414. DOI: 10.3389/fpsyt.2019.00414

Flore J, Kokanović R, Callard F, Broom A & Duff C (2019) Unravelling subjectivity, embodied experience and (taking) psychotropic medicationSocial Science & Medicine. 230, 66-73. DOI: 10.1016/j.socscimed.2019.04.004

Kokanović R, Brophy L, McSherry B, Flore J, Moeller-Saxone Kristen & Herrman H (2018) Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners. The Australian and New Zealand Journal of Psychiatry. 52(9), 826-833.

Knight F, Kokanović R, Ridge D, Brophy L, Hill N, Johnston-Ataata K & Herrman H (2018) Supported Decision-Making: The Expectations Held by People With Experience of Mental IllnessQualitative Health Research. 28(6), 1002-1015.

Reports

Kokanović R, Brophy L, McSherry B, Hill N, Johnston-Ataata K, Moeller-Saxone K and Herrman H. (2017) Options for Supported Decision-Making to Enhance the Recovery of People Experiencing Severe Mental Health Problems. Melbourne: Melbourne Social Equity Institute, University of Melbourne. ISBN: 978 0 9942709-7-9.

Conference presentations

Flore J and Kokanovic R. Iatrogenesis: Experiencing the complex effects of psychotropic medication. 7th Qualitative Research on Mental Health Conference, Berlin, Germany, September.

Kokanović R and Brophy L. (2017) Supported Decision-Making: Expectations held by people with lived experiences of mental illness. International Academy of Law and Mental Health (IALMH) International Congress, Prague, Czech Republic.

Brophy L, Kokanović R & Tanner C. (2015) Perspectives on Supported Decision-Making and Community Treatment Orders. XXXIVth International Congress of Law and Mental Health. Vienna, Austria.

Invited talks and presentations

Kokanović R. (2015) The ethics of ambivalence and being “good enough'': Psychiatrists’ experiences of supported decision-making in the context of mental illness. St Vincent’s Hospital – Mental Health. Melbourne, Australia.

 

Multiple Medicines

Peer-reviewed journal articles

Tudball J, Smith L, Ryan K, Williamson M and Manias E. (2015) Challenges to consumers travelling with multiple medicinesJournal of Pharmaceutical Health Services Research. 6(3), 127-132.

Conference presentations

Tudball J, Smith L, Ryan K, Morgan T, Eichhorn U & Simpson V. (2015) Translating people's lived experiences with multiple medicines into an online resource to inform decision making. International Society for Evidence-Based Health Care. Sydney, Australia.

Tudball J and Smith L. (2013) Managing multiple medicines gets easier with age? Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

 

Ageing

(Online resource published 2015)

Conference presentations

Team V, Ryan K, Wild K, Tudball J, Maypilama L & Smith L. (2015) Healthtalkonline Australia: Immigration, ageing and health. Inaugural International Conference on Migration Social Disadvantage and Health. Melbourne, Australia.

Wild K, Ryan K, Team V, Tudball J, Maypilama L & Smith L. (2014) The use of visual methods in ageing research. XVIII International Sociological Association (ISA) World Congress of Sociology. Yokohama, Japan.

Team V. (2014) Cultural diversity in people’s experiences of ageing. The Cultural Diversity in Ageing 2014 Conference, Melbourne, Australia.

Ryan K. (2013) Personal experience narratives of ageing: An evidence-based multimedia web resource. Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

Team V. (2013) The need for an Australian Healthtalkonline module on ageing experiences. Grey Expectations: Ageing in the 21st Century, 46th National Conference. Sydney, Australia.

Wild K and Ryan K. (2013) Including remote-dwelling Aboriginal participants in broad qualitative research. Grey Expectations: Ageing in the 21st Century 46th National Conference. Sydney, Australia.

Launch presentation

Ryan K. (2015) Experiences of Ageing in Australia. Paper presented at the Healthdirect Australia and Healthtalk Australia launch of The Lived Experience of Ageing module. Sydney, Australia.

 

Early Parenthood

(Online resource published 2014)

Books

Kokanović R, Michaels P and Johnston-Ataata K (Eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Palgrave MacMillan.

Book chapters

Johnston-Ataata, K. (2020) Reflecting on the past: The role of biographical, familial and social memory in new mothers’ interpretations of emotional experiences in early parenthood. In C. Pascoe Leahy and P. Bueskens. (Eds.) Australian Mothering: Historical and Sociological Perspectives. Singapore: Palgrave MacMillan.

Michaels P and Kokanović R (2018) The complex and contradictory emotional paths to parenthood. In R Kokanović, P Michaels and K Johnston-Ataata (Eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Palgrave MacMillan.

Stone M and Kokanović R (2018) Narrating and disrupting postnatal depression. In R Kokanović, P Michaels and K Johnston-Ataata (Eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Palgrave MacMillan.

Johnston-Ataata K, Kokanović R & Michaels P (2018) ‘One of the most vulnerable times in your life’: Expectations and emotional experiences of support in the early postnatal period. In R Kokanović, P Michaels and K Johnston-Ataata (Eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Palgrave MacMillan.

Peer-reviewed journal articles

Stone M, Kokanović R, & Broom A (2018) Care(less) encounters: Early maternal distress and the haunted clinicSubjectivity. 11(2), 108–127. DOI: 10.1057/s41286-018-0047-0

Stone M and Kokanović R. (2016) “Halfway towards recovery”: Rehabilitating the relational self in narratives of postnatal depressionSocial Science & Medicine. 163, 98-106.

Conference presentations

Johnston-Ataata, Kokanović R & Michaels P. ‘One of the most vulnerable times in your life’: Expectations and emotional experiences of support in the early postnatal period. AMIRCI (Australian Motherhood Initiative for Research and Community Involvement) 9th International Conference, Sydney, July.

Johnston-Ataata K and Kokanovic R (2018) Reflecting on the past: How contemporary mothers draw on biographical, family and social histories in making sense of emotional experiences in early parenthood. Australian Mothering in Contemporary and Historical Perspective symposium. University of Melbourne, Melbourne, Australia, February. (Invited presentation)

Stone M and Kokanović R. (2016) "Halfway towards recovery": Rehabilitating the relational self in narratives of postnatal depression. International Conference on Narratives of Health & Illness, Tenerife, Canary Islands.

Johnston-Ataata K and Kokanović R. (2015) "I just thought I could do it all on my own": Diverse parents' experiences of distress, isolation and dependency in early parenthood. The Australian Sociological Association - Family, Relationships and Gender Thematic Group Symposium. Melbourne, Australia.

McNair R. (2015) Same-sex parented families: Triumphs and challenges. Australian Society for Psychosocial Obstetrics and Gynaecology Conference. Royal Women’s Hospital, Melbourne, Australia. (Invited presentation)

Zalitis D. (2014) The emotional experiences of pregnancy, birth and early parenthood. NSW Midwives Association Conference. Sydney, Australia. (With R Kokanović and K Johnston-Ataata)

Invited talks and presentations

Johnston-Ataata K. (2014) Insights into the myths vs realities of the transition to parenthood: Examining the research and a new research tool. Webinar presentation to the Childbirth and Early Parenting Educators Association (CAPEA) – NSW Branch, December.

Media

Johnston-Ataata K. (24 November 2014) Interview on Mornings with Linda Mottram (702 ABC Sydney)

Johnston-Ataata K. (24 November 2014) Interview on Afternoons with Louise Maher (666 ABC Canberra / Newcastle)

Johnston-Ataata K. (15 November 2014) Interview on Saturday Morning with Hillary Harper (774 ABC Melbourne)

Johnston-Ataata K and Kokanović R. (2 October 2014) 'I didn't know who I was anymore': Myths vs realities of early parenthoodThe Conversation. (Cross-posted at

The Washington Post, Women's Agenda and Medical Xpress)

Johnston-Ataata K. (19 September 2014) Invited guest on Radio National Life Matters talkback program "So you're going to be a dad"

Kokanović R and Johnston-Ataata K. (7 November 2014) 'Support for new parents is just a click away', Monash University news.

 

Depression

(Online resource published 2012)

Book chapters

Kokanović R and Philip B. (2014) ‘Medicalising Emotional Talk: Disclosing a Diagnosis of Depression’ in Davis M & Manderson L. (Eds) Disclosure and identity in health and illness. London: Routledge.

Peer-reviewed journal articles

Flore J, Kokanović R, Duff C & Callard F. (2020) The antidepressant in women’s lifeworlds: feminist materialist encounters. BioSocieties. https://doi.org/10.1057/s41292-020-00189-2

Ridge D, Broom A, Kokanović R, Ziebland S & Hill N (2017) Depression at work, authenticity in question: Experiencing, concealing and revealingHealth: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. DOI: 10.1177/1363459317739437

Ridge D, Kokanović R, Broom A, Kirkpatrick S, Anderson C & Tanner C. (2015) “My dirty little habit”: Patient constructions of antidepressant use and the ‘crisis’ of legitimacySocial Science & Medicine. 146, 53-61.

Anderson C, Kirkpatrick S, Ridge D, Kokanović R & Tanner C. (2015) Starting antidepressant use: a qualitative synthesis of UK and Australian dataBritish Medical Journal Open. 5(12), 1-9.

Smith L, Hill N & Kokanović R. (2015) Experiences of depression, the role of social support and its impact on health outcomesJournal of Mental Health. 24(6), 342-346.

Kokanović R and Bozic-Vrbancic S. (2015) Being marked as different: The emotional politics of experiences of depression and migrant belongingsEmotion, Space and Society. 16, 130-137.

Kokanović R, Bendelow G & Philip B. (2013) Depression: The ambivalence of diagnosis. Sociology of Health and Illness. 35(3), 377-390.

Conference presentations

Kokanović R & Flore J. The antidepressant in women’s lifeworlds. The Canadian-Australian Health Sociology Conference, Canada, June.

Ridge D, Kokanović R, Kirkpatrick S, Anderson C & Tanner C. (2014) “[My] Dirty Little Secret”: The Moral Cosmology of Antidepressant Taking. British Sociological Association Medical Sociology Annual Conference. Aston University, UK.

Kokanović R, Philip B, Ridge D & Ziebland S. (2014) Depression, work and identity in a neoliberal world: Perspectives from Australia and the UK. XVIII International Sociological Association (ISA) World Congress of Sociology. Yokohama, Japan.

Kokanović R and Philip B. (2013) Questioning notions of ‘recovery’ from ‘depression’. British Sociological Association Medical Sociology Annual Conference. University of York, UK.

Kokanović R and Philip B. (2013) Pharmaceutical encounters – subjective experiences of antidepressant medication. EASA Medical Anthropology Network AAA Society for Medical Anthropology Joint International Conference. Tarragona, Spain.

Kokanović R. (2012) The ‘recovery’ of the self through depression. The Phenomenology of Depression International Workshop. University of Osnabruck, Germany.

Invited talks and presentations

Kokanović R. (2013) Medicalising emotions: Antidepressant use in women. St Mary’s Hospital, Réseau Universitaire Intégré de Santé (RUIS) McGill University. Montreal, Canada. 

Media

Patients fear antidepressants are a "dirty little habit". Damien Ridge, Huffington Post (The Blog), 5 November 2015.

 

Lives of Substance

(Online resource published 2016)

Peer-reviewed journal articles

Treloar C, Pienaar K, Dilkes-Frayne E and Fraser S (2017) Lives of Substance: a mixed-method evaluation of a public information website on addiction experiencesDrugs: Education, Prevention and Policy. DOI: 10.1080/09687637.2017.1397602

Dilkes-Frayne E, Fraser S, Pienaar K & Kokanović R. (2017). Iterating 'addiction': Residential relocation and the spatio-temporal production of alcohol and other drug consumption patternsInternational Journal of Drug Policy. 44, 164-173.

Pienaar K & Dilkes-Frayne E. (2017). Telling different stories, making new realities: The ontological politics of ‘addiction’ biographiesInternational Journal of Drug Policy. 44, 145-154.

Fraser S, Pienaar K, Dilkes-Frayne E, Moore D, Kokanović R, Treloar C and Dunlop A. (2017). Addiction stigma and the biopolitics of liberal modernity: A qualitative analysisInternational Journal of Drug Policy. 44, 192-201.

Moore D, Pienaar K, Dilkes-Frayne E and Fraser S. (2017). Challenging the addiction/health binary with assemblage thinking: An analysis of consumer accountsInternational Journal of Drug Policy. 44: 155-163.

Pienaar K, Moore D, Fraser S, Kokanović R, Treloar C & Dilkes-Frayne E. (2016). Diffracting addicting binaries: An analysis of personal accounts of alcohol and other drug 'addiction'Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. 21(5), 519-537.

Pienaar K, Fraser S, Kokanović R, Moore D, Treloar C & Dunlop A. (2015) New narratives, new selves: Complicating addiction in online alcohol and other drug resources. Addiction Research and Theory. 23(6), 499-509.

Reports

Pienaar K, Dilkes-Frayne E, Fraser S, Kokanović R, Moore D, Treloar C & Dunlop A. (2017) Experiences of alcohol and other drug addiction, dependence or habit in Australia: Findings and recommendations from a national qualitative study. Melbourne: National Drug Research Institute, Curtin University.

Conference presentations

Fraser S. (2017). Doing ontopolitically-oriented research: Investigating and enacting lives of substance. Contemporary Drug Problems Conference, Helsinki, Finland, August.

Fraser S. (2017). Rethinking addiction: Promoting understanding and reducing stigma. Invited plenary presentation and discussion panel. Counties Manukau Alcohol and other Drug Research Symposium, Auckland, New Zealand.

Farrugia A and Fraser S. (2017). Experiences of alcohol and other drug addiction, dependence or habit in Australia: Findings from a national qualitative study. Addiction Conference, Gold Coast.

Fraser S, Pienaar K, Dilkes-Frayne E, Moore D, Kokanović R, Treloar C & Dunlop A. (2016) Lives of Substance: Experiences of addiction, dependence or drug habit in Australia. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Dilkes-Frayne, E. (2016). How does place generate or disrupt alcohol and other drug consumption? Residential relocation in accounts of ‘addiction’. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Fraser S. (2016). Beyond disease: Responding to accounts of ‘addiction’-related stigma and discrimination. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Moore D. (2016). Consumer accounts of ‘addiction’, health and well-being: Implications for policy and practice. Lives of Substance (LoS) Symposium: Experiences of Addiction, Dependence or Drug Habit in Australia. Australasian Professional Society on Alcohol and other Drugs (APSAD) Conference, Sydney, Australia.

Pienaar K. (2016) ‘Telling stories, making selves: A critical analysis of ‘addiction’ biographies’. Social and Legal Studies of Addiction symposium, Melbourne, Australia.

Dilkes-Frayne E. (2016) ‘Producing continuity and change in drug consumption in the dynamic spaces of daily life’. Social and Legal Studies of Addiction symposium, Melbourne, Australia.

Pienaar K, Moore D, Fraser S, Kokanović R, Treloar C & Dilkes-Frayne E. (2015) Beyond the volition/compulsion binary: A diffractive reading of personal accounts of alcohol and other drug (AOD) ‘addiction’. Contemporary Drug Problems (CDP) Conference. Lisbon, Portugal.

Invited talks and presentations

Moore D. (2015) Challenging addiction. Keynote address at the Australian Youth AOD Conference, Melbourne, Australia.

Pienaar K. (2015) A new online resource on lived experiences of alcohol and other drug (AOD) addiction in Australia. Turning Point Alcohol and Drug Centre. Melbourne, Australia.

Media

Fraser S and Pienaar K. (22 November 2016) Interview on Small Change, Radio Adelaide (101.5 FM) about Lives of Substance research findings. Listen to the podcast.

Fraser S. (5 October 2016) Interview on Radio National RN Afternoons program about Lives of Substance research findings (with website advocate Kate Holden). Listen to the podcast.

 

Healthtalk Australia

Conference presentations

Kokanović R, Johnston-Ataata K, Hill N & Hart C. (2016) Personal Experiences of Health and Illness on the Internet: DIPEx International Collaboration and Healthtalk Australia. Third ISA Forum of Sociology. Vienna, Austria.

Kokanović R (2014) Using qualitative research inpatient experiences to inform health service development: Healthtalk Australia. Australian Disease Management Association Conference. Melbourne, Australia.

Kokanović R and Bozic S. (2014) Imaging the subject. Narrative Matters: Narrative Knowing / Récit et Savoir. Paris, France.

Invited talks and presentations

Johnston-Ataata K, Peters D, Hill N, Flore J & Kokanović R. (2019) Intersections of mental and physical health: Healthtalk Australia and the value of online health and illness experiences. Keynote presentation, Equally Well symposium. Melbourne, Australia.

Kokanović R. (2015) Using qualitative research on health experiences to support young peoples' mental health. Orygen, The National Centre for Excellence in Youth Mental Health, Melbourne, Australia.

Ryan K. (2012) Personal experiences of health and illness on the web: A multi-media resource for patients, families and professionals. Paper presented at the Centre for Medicine Use and Safety, School of Pharmaceutical Sciences, Monash University, Melbourne.

Smith, L. (2014). “Healthtalkonline Australia: Using Research on Patient Experiences to Inform and Support Self-Management of Chronic Conditions”. Australian Disease Management Association, Keynote Presentation, Melbourne, Australia.

Smith, L. (2019). “Globally Empowered Patients: Because we care!” International Federation of Pharmaceutical Scientists and Pharmacists, Invited Plenary Presentation - Abu Dhabi, UAE.

Media

Kokanović R. (27 July 2015) Interview on Croatian Program, SBS Radio about Healthtalk Australia.

 

Other related publications

Peer-reviewed journal articles

Duff C, Kokanovic R, Flore J, Thomas, S.D.M., Callard F & Blackman L (2020) Perspectives on person-centred care for borderline personality disorder: A critical research agendaHealth Sociology Review. Published Online First: 19 January 2020. DOI: 10.1080/14461242.2020.1715815

Maylea C, Alvarez-Vasquez S, Dale M, Hill N, Johnson B, Martin J, Thomas S & Weller P. (In Press) Independent Mental Health Advocacy – a model of social work advocacy? Australian Social Work. DOI: 10.1080/0312407X.2020.1725076.

Weller P, Alvarez-Vasquez S, Dale M, Hill N, Johnson B, Martin J, Maylea C & Thomas S. (2019). The need for independent advocacy for people subject to mental health community treatment ordersInternational Journal of Law and Psychiatry. 66, 101452.

Johnston-Ataata, K. (2019) Space and the navigation of intimacy in intergenerational Tongan-European Australian relationships during partnering and early parenthood. Emotion, Space and Society. 31, 71-77. DOI: 10.1016/j.emospa.2019.02.002

Kokanović R & Flore J (2017) Subjectivity and illness narrativesSubjectivity. 10(4), 329-339.

Lewis S, Willis K, Kokanovic R & Pirotta M (2015) ‘I’m managing myself’: How and why people use St John’s wort as a strategy to manage their mental health riskHealth, Risk & Society. 17(5-6), 439-457.

Kokanović R, Butler E, Halilovich H, Palmer V, Griffiths F, Dowrick C & Gunn J. (2013) Maps, models, and narratives: The way people talk about depressionQualitative Health Research. 23(1), 114-125.

Ziebland S and Kokanovic R. (2012). Emotions and chronic illnessChronic Illness. 8(3), 159-162.

Locock L and Smith L. (2011) Personal benefit, or benefiting others? Deciding whether to take part in clinical trialsClinical Trials. 8(1), 85-93.

Locock L and Smith L. (2011) Personal experiences of taking part in clinical trials – A qualitative studyPatient Education and Counseling. 84(3), 303–309a.

Conference presentations 

Anderson C, Chana T, Ryan K, Smith L & Herxheimer A. (2012) "They Filled Me with Pills." Patient's Experiences of Taking Medicines Following a Heart Attack. Social Pharmacy & Pharmaceutical and Health Consumer Protection Conference. Phuket, Thailand.

Ryan K, Smith L, Hislop J, Anderson C & Herxheimer A. (2012) How Do Women Talk About HRT? Discourses of Risk and Decision-Making in Experiential Narratives of Menopause. Social Pharmacy & Pharmaceutical and Health Consumer Protection Conference. Phuket, Thailand.

Reports

Watson, J., Maylea, C., Roberts, R., Hill, N., & McCallum, S. (2020). Preventing gender-based violence in mental health inpatient units. NSW: ANROWS.

Maylea, C. Alvarez-Vasquez, S., Dale, M., Hill, N., Johnson, B., Martin, J., Thomas, S. & Weller, P. (2019) Evaluation of the Independent Mental Health Advocacy Service (IMHA). RMIT, Melbourne.